Wellesley will host the eighth annual Plunge for Elodie raises money to benefit research programs for Epidermolysis bullosa, a rare skin disease.

Target Indications Also Include Peeling Skin Syndrome, SAM Syndrome, Palmoplantar Keratoderma and Severe Atopic DermatitisThird Quoin Patent ...

Krystal Biotech's VYJUVEK, a first-mover gene therapy for DEB, has received a positive CHMP recommendation. Read why KRYS ...

The winner of the annual series between the San Diego Padres and Seattle Mariners will now win the Vedder Cup, a trophy ...

Ole Miss basketball coach Chris Beard credits his friendship with Sam Schulz for inspiration as the Rebels hone in on NCAA ...

The European Medicines Agency’s Committee for Medicinal Products for Human Use recommended the approval of Vyjuvek for the treatment of wounds in patients with dystrophic epidermolysis bullosa ...

Dilgen, a 22-year-old Tottenville resident, has been battling epidermolysis bullosa (EB), a rare, life-threatening genetic ...

A revolutionary dressing that aims to repair the cells of people with an extremely painful skin condition and prevent infection is being investigated by Irish researchers. It was inspired by the ...

In December 2024, Ultragenyx submitted a BLA to the FDA seeking accelerated approval for UX111 (formerly ABO-102) AAV gene therapy as a treatment for patients with Sanfilippo syndrome type A (MPS IIIA ...

THE FUNDRAISER INCLUDED PEOPLE DIVING INTO THE WATER TO RAISE MONEY TO SUPPOR RESEARCH ON EPIDERMOLYSIS BULLOSA. IT’S A DISORDER THAT CAUSES THE SKIN TO BE VERY FRAGILE. THE SLIGHTEST TRAUMA OR ...

This award is part of a charity drive benefiting the Epidermolysis Bullosa Research Partnership, an organization co-founded by Eddie and Jill Vedder. The charity is dedicated to funding research ...