He had a very rare, what they call an ultra-rare genetic disorder, called Tay Sachs Disease and there’s no treatment for that,” Anderson said. With personal ties to this initiative ...

Patterson, members of the FSU Board of Trustees, and past president of the National Tay-Sachs ... of rare disease research, introducing Florida House Bill 907 — the Sunshine Genetics Act ...

Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases ...

One childless man’s journey through the sci-fi start-ups, DIY donor clubs, and group masturbation retreats attempting to save ...

there are other ways of editing the human germ line that could cure diseases without changing the genetic lineage of our species. Children born with Tay-Sachs disease, for instance, lack a ...

His son, Andrew, suffered from Tay-Sachs disease, an ultrarare fatal genetic disorder with only 16 cases annually nationwide. “Ensuring every newborn has access to life-saving screening and ...

With drugs on the horizon for treating and possibly preventing transthyretin amyloid cardiomyopathy, cardiologists are ...