He had a very rare, what they call an ultra-rare genetic disorder, called Tay Sachs Disease and there’s no treatment for that,” Anderson said. With personal ties to this initiative ...

Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases ...

One childless man’s journey through the sci-fi start-ups, DIY donor clubs, and group masturbation retreats attempting to save ...

Ten projects at Queen’s are receiving support from the Canadian Institutes of Health Research to advance research that will have a high impact on health care knowledge and delivery.

there are other ways of editing the human germ line that could cure diseases without changing the genetic lineage of our species. Children born with Tay-Sachs disease, for instance, lack a ...

His son, Andrew, suffered from Tay-Sachs disease, an ultrarare fatal genetic disorder with only 16 cases annually nationwide. “This legislation is deeply personal to me,” Anderson said.