The family of nine-year-old Charleigh Pollock will continue to be covered for the drug, which costs $1 million a year, until ...

A temporary reprieve for a Vancouver Island family after their terminally-ill daughter will continue to have access to ...

A charity walk is to be held to raise funds for the family of a Doncaster youngster battling a terminal genetic disease.

Provincial funding of 9-year-old Charleigh Pollock's life-sustaining treatment has been extended by 3 months until the end of ...

Funding for Charleigh's life-sustaining medication has been extended for another three months, according to her mom.

The father of a nine-year-old girl with a rare disease likened to childhood dementia has called for health bosses to prolong access to a "miraculous" treatment. Addy Clarke, from Swindon, was four ...

Her son, Isaac, eight, had CLN2 Batten disease diagnosed in August 2021. It is an incurable condition which causes childhood dementia, epilepsy and loss of sight. Ms Tilley said: "It is agonising.

Aimee Tilley, from Kettering in Northamptonshire, was participating in a rally in Westminster on Wednesday after being told NHS access to the drug Brineura, which slows the progress of Batten disease, ...

The mother of a six-year-old girl with a rare neurodegenerative disease has urged health bosses to "do the right thing" amid fears over the future of the medication she takes. Flory, from Coventry, ...

One of Australia’s top mining journalists, Kristie Batten writes for Stockhead every week in her regular column placing a watchful eye on the movers and shakers of the small cap resources scene. VHM ...

Marcela Henao-Tamayo receives funding from NIAID, NIH and OEDIT. An outbreak of tuberculosis, or TB – a lung disease that is often accompanied by a hacking cough – began in January 2024 in ...

A new study is predicting estuaries along the East Coast of the U.S. will experience marine heat wave conditions up to a third of the year by the end of the century. A first-of-its-kind study led ...