Rare diseases affect one in 17 people in the UK, but a Government initiative designed to improve their quality of life will ...

Butterfly disease is a collection of very rare genetic conditions that cause severe skin fragility. Even the slightest pressure or friction from clothing, touch, or minor injuries can cause the ...

A young father-of-six has contracted an ultra-rare skin disease, with doctors from one of the most respected medical institutions in the world giving him just six months to live. Ryan Becker of ...

That's why scientists celebrated the development of an incredible new gel that has proven to help close the wounds associated with this rare skin disease ... families were very excited about ...

Steven Daniel Daveluy, MD, FAAD, discussed how artificial intelligence (AI) can leverage extensive patient data and guide dermatologists to improve early diagnosis and treatment of rare dermatological ...

Dilgen, who courageously battles EB, the rare skin ... damage to his skin, yet remains a powerful source of optimism to those around him and encouragement to others with the disease.

said the hospital has established a hereditary skin disease clinic to ensure the availability of long-term treatment for patients, including "butterfly children" and other rare disease sufferers.