Health and Me on MSN1h
These Are The Five Rare Diseases You Did Not Know Existed
It is always good to know about diseases so you can read the signs your body is telling you. However, there exists many ...
American Council on Science and Health1d
“Rare” but Not Uncommon: The Hidden Crisis of Rare Diseases
Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases ...
Live Science on MSN2d
POLG diseases: Rare genetic conditions that starve cells of energy and afflicted the late Prince of Luxembourg
POLG-related diseases disrupt the function of the mitochondria, or "powerhouses" of the cell — starving them of energy.
Threat to son's treatment for rare disease 'agony'
A mother has spoken about her "painful" experience over the potential end to her son's life-enhancing treatment for a rare ...
Cherokee Phoenix17h
Cherokee Nation Rare Disease Task Force outlines recommendations tribe can take to assist those with rare diseases
The Cherokee Nation Health Services Rare Disease Task Force has released a report outlining progress made over the past year ...
My son’s rare disease diagnosis spurred me to ditch Big Pharma for a biotech startup
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
Florida Politics3d
Adam Anderson’s ‘Sunshine Genetics Act’ advances, offering promise for rare disease research and treatment
Ensuring every newborn has access to life-saving screening and treatment is both a moral and economic imperative.' ...
ISRAEL21c6d
Diagnosing rare diseases could soon get much simpler
Impilo's prototype platform scours medical records to pinpoint symptoms of unusual illnesses that are often overlooked by ...
Prince Frederik of Luxembourg dies from rare disease
Prince Frederik of Luxembourg, the youngest son of Prince Robert of Luxembourg and Princess Julie of Nassau, has died after a ...
Hub3d
Scientists design experimental protein booster for rare genetic diseases
Johns Hopkins scientists develop mRNA "booster" as potential new way to treat rare genetic diseases marked by too low levels ...
The Oxford Student4h
“Connecting the dots”: Insights from Oxford’s First Student Rare Disease Conference
The Oxford rare disease conference brought together experts and patients to raise awarenes of rare disease care.
A Young Prince of Luxembourg Dies of a Rare Genetic Disease
Prince Frederik, 22, was a founder and the creative director of a foundation that raised awareness of POLG disorder.